Description

The Jackson Heart Study (JHS) is a large, community-based, observational study whose 5,301 participants were recruited from among non-institutionalized African-American adults in urban and rural areas of the three counties (Hinds, Madison, and Rankin) that make up the Jackson, MS, USA.

Available Data

 DataShare has linked Medicare Fee-for-Service claims data for the JHS cohort. Duke is no longer a JHS Vanguard Center (effective 8/12/2024). Researchers must obtain JHS data access from the JHS Coordinating Center (jhsccdc@umc.edu).

Linked Medicare Files

We also have an identifier crosswalk for JHS ID to BENE ID.

CMS has approved linkage to the JHS cohort, Area HealthCare Resource files, US Census data, NPI/NPPES registry, Provider of Service file, and UMLA Metathesaurus.

Cost to Researchers

Researchers using linked JHS-Medicare data may be charged the DataShare annual infrastructure fee.

Governance

• Researchers may only access JHS-linked Medicare data under CMS DUA 54827, which provides data to Duke and the JHS Coordinating Center.  A DUA amendment may be necessary to expand scope. 
• Publication guidelines, including required acknowledgement and disclaimer language

Resources

• Data documentation is available on the JHS Website and with the JHS data in Duke PACE.
• Timeline of study evaluations