Jackson Heart Study (JHS)
Description
The Jackson Heart Study (JHS) is a large, community-based, observational study whose 5,301 participants were recruited from among non-institutionalized African-American adults in urban and rural areas of the three counties (Hinds, Madison, and Rankin) that make up the Jackson, MS, USA.
Available Data
 DataShare has linked Medicare Fee-for-Service claims data for the JHS cohort. Duke is no longer a JHS Vanguard Center (effective 8/12/2024). Researchers must obtain JHS data access from the JHS Coordinating Center (jhsccdc@umc.edu).
Linked Medicare Files
Years | File Name |
---|---|
1991 - 2019 | FFS Inpatient |
1991 - 2019 | FFS Outpatient |
1991 - 2019 | FFS Carrier |
1991 - 2019 | FFS Home Health |
1991 - 2019 | FFS Hospice |
1991 - 2019 | FFS Skilled Nursing Facility |
1991 - 2019 | FFS Durable Medical Equipment |
1991 - 2019 | MBSF: Base |
1991 - 2019 | MBSF: Cost & Use |
1991 - 2019 | MBSF: Chronic Conditions (27 conditions) |
2006 - 2019 | Part D Event Option 1 PDE variables are available through 2016 and option 2 variables for 2017- 2019. Option 1 variables have actual prescriber identifiers, whereas option 2 do not. |
2006 - 2019 | Part D Drug Characteristics |
2006 - 2014 | Part D Plan Characteristics |
2015 - 2019 | Plan Characteristics |
2010 - 2019 | Part D Formulary |
We also have an identifier crosswalk for JHS ID to BENE ID.
CMS has approved linkage to the JHS cohort, Area HealthCare Resource files, US Census data, NPI/NPPES registry, Provider of Service file, and UMLA Metathesaurus.
Cost to Researchers
Researchers using linked JHS-Medicare data may be charged the DataShare annual infrastructure fee.
Governance
- Researchers may only access JHS-linked Medicare data under CMS DUA 54827, which provides data to Duke and the JHS Coordinating Center. A DUA amendment may be necessary to expand scope.Â
- Publication guidelines, including required acknowledgement and disclaimer language
Resources
- Data documentation is available on the JHS Website and with the JHS data in Duke PACE.
- Timeline of study evaluations